There are two recent
incidents which made me think. They are lessons learnt and they influence my
way of evaluating situations and making professional and personal decisions.
Last April, I attended
the IETM plenary meeting in Porto, Portugal. There were different issues concerning access for people
with mobility issues (wheelchair users, pregnant, obese), creating discomfort
and some tension, such as conference rooms and WCs accessible only by stairs. So,
when a disabled colleague told me that the closing party would be taking place
at an inaccessible venue, I naturally told her that, if she couldn’t go, I
wouldn’t go either. Was this enough, though?
Our British colleagues,
both individual delegates with and without disabilities, as well as
institutions, did not keep this to themselves. They used the social media to
let everybody know that the venue for the closing party would not be accessible.
They asked for action and solidarity and they invited everyone to attend an
alternative closing party at an accessible venue (read the IETM statement that
followed, which may also be a lesson for us at an institutional level).
Someone wrote at the
time: “We won’t go if our disabled colleagues cannot go. Just like we wouldn’t
know if our black colleagues could not go.” This was perhaps the most marking
statement for me, among many others.
As recent incidents in
Portugal have shown, we are far from solving an issue like racism, of course.
Nevertheless, many more people today would feel upset and also ashamed to go
into a place with a “Whites only” sign. If this is the case regarding black
people, why do we still accept going into so many places with invisible
“Able-bodied only” signs? Why - before organising an exhibition, performance,
play, concert, conference or another kind of event - don’t we first make sure
that all our colleagues, as well as family members, friends and also people we
don’t know will have the opportunity to attend, should they wish to
Would this limit our
choices? It would indeed, very much so. But it’s probably the least we can do in
order to put an end to a vicious circle which involves us all: citizens without
disabilities and special needs, citizens with disabilities and special needs,
associations, public and private cultural organisations, architects, municipalities
and state organisations. All of us who, for one reason or another (with one
excuse or another), do not abide by the law or accept that the law is not
implemented. Is access a disabled person’s problem only? Isn’t it everyone’s?
Why do we silently comply with discrimination? And why when we act against it
we also do it so silently?
In a recent debate organised
by Acesso Cultura | Access Culture, regarding the non-implementation of good practices in cultural venues in
Portugal, it became obvious that this is not just about the law and it is not just
about one law, the 2006 accessibility law. It has to do with our constitution,
with different laws and it has to do with our culture, our way of being. Different
situations were identified during the debate in six different Portuguese cities
(the summary in Portuguese),
which may also be seen in association with the findings presented by Acesso
Cultura | Access Culture in a report about the meetings it promoted with culture
professionals all over Portugal in 2017 (read the report).
I believe that, when consulting these documents, each one of us would easily
identify his/her own responsibilities for the continuous discrimination against
people with disabilities and special needs.
Photo taken from the Faecbook page of Mariana Seara. |
There was a second
incident recently that got me thinking. On 19 June, the Centre for Social
Studies of the University of Coimbra organised a seminar on Disability and Self-determination: the Challenge of Independent Living (read about independent living). There were two special guests: Adolf Ratzka, Director of the Institute of
Independent Living, and Kapka Panayotova, President of the European Network of
Independent Living, both long-time activists in the struggle for independent
living. According to one person who attended this meeting, two other guests, with political responsibilities in Portugal, briefly
addressed the audience in the opening ceremony and then stated that they would not
be able to stay. According to this one testimony I read about the incident,
Kapka Panayotova went to the exit, grabbed the double-leaf door and told them
that they could not leave; that this was too important and they would have to
listen; that they would be arrogant if they left.
A second lesson regarding
action, responsibility, solidarity. It doesn’t really matter who those two
guests were. We all know that this is all too common in Portugal; that
politicians and other people with responsibilities attend the opening
ceremonies (because we ask them to, because we want them to, because we show
them that we value their brief presence and banal statements), but rarely stay to
listen and discuss. Real discussions take place in their absence, when they are
the ones who have the power to make things happen (some things, for sure) and
they should seek to be informed and part of the discussion among colleagues.
Should we continue in
this segmented, and surely comfortable, practice of debating and acting, the
necessary developments and improvements will take much longer to happen. Some
things have already taken too long, they don’t make sense in 2018, they shouldn’t
be considered acceptable or excusable. There is an urgent need for informed action,
solidarity and a strong sense of responsibility, big or small; the
responsibility each one of us has in not supporting, actively or passively, any
kind of discrimination.
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